This is the Bourke Family – Paddy, Rosanne and G stands for Gráinne, a beautiful 12 year old girl who was diagnosed with the atypical form of INAD 3 years ago.
No one – especially no child – should suffer from a fatal disease that destroys their brain and nerves. Infantile Neuroaxonal Dystrophy (INAD) is one of those diseases. It is rare, genetic – and devastating. A clinical gene therapy trial is currently the best hope for children, like Gráinne, afflicted with INAD.
A clinical gene therapy trial is incredibly expensive! $7 Million are needed to make this happen.
To support this wonderful family, the community of Newtown are holding some fundraising events to help reach the $7 Million goal.