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This is the Bourke Family – Paddy, Rosanne and G stands for Gráinne, a beautiful 13 year old girl who was diagnosed with the atypical form of INAD 3 years ago.
No one – especially no child – should suffer from a fatal disease that destroys their brain and nerves. Infantile Neuroaxonal Dystrophy (INAD) is one of those diseases. It is rare, genetic – and devastating. A clinical gene therapy trial is currently the best hope for children, like Gráinne, afflicted with INAD.
A clinical gene therapy trial is incredibly expensive! $7 Million are needed to make this happen.
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